Resources

Alexander Graham Bell Association for the Deaf and Hard of Hearing

The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) was founded in 1890. AG Bell is the world’s oldest and largest membership organization promoting the use of auditory learning and spoken language by children and adults with hearing loss. AG Bell’s mission is: Advocating Independence Through Listening and Talking. This website provides comprehensive information in regard to hearing loss including: facts about hearing loss, communication modalities, early identification of hearing loss, hearing technology, educational membership, adult rehabilitation and advocacy and legal issues. This site hosts an “ask an expert” link that can provide valuable insight to a specific query. Additional website components of importance include information on publications, financial aid and scholarships, a directory of services (listed by state), and a bookstore. Additional information can be found at www.agbell.org

American Society for Deaf Children (ASDC)

The ASCD, founded in 1967, is a non-profit organization of parents/families and professionals whose purpose is to provide support, encouragement, and information to families raising children who are deaf or hard-of-hearing. ASDC supplies information and support to families to ensure that their decisions and actions are based on up-to-date and accurate knowledge. ASDC promotes a positive attitude toward signing and Deaf culture. For more information, visit: www.deafchildren.org

Auditory-Verbal International

Auditory-Verbal International (AVI) is an organization that promotes the use of the Auditory-Verbal approach to teach children who are deaf or hard of hearing to learn to use even minimal amounts of amplified residual hearing or hearing through electrical stimulation (cochlear implants) to listen, to process verbal language, and to speak. AVI is also the governing body that oversees the certification process of auditory-verbal therapists worldwide. The AVI website (www.auditory-verbal.org) contains a parent page, scholarship information, a directory of service providers, and links to other websites related to auditory-verbal therapy.

BabyHearing.org

The Baby Hearing website was developed by Dr. Mary Pat Moeller at Boys Town National Research Hospital in conjunction with the National Institute on Deafness and Other Communication Disorders. The website aims to answer parents’ questions about infant hearing screening and follow-up testing, steps to take after the diagnosis of hearing loss, hearing loss and amplification, speech and language development, and parenting issues. Visit www.babyhearing.org for more information.

Beginning Services

This is a nonprofit organization based in North Carolina. Established in 1987, it was founded to provide support to people age birth to 21. Their website (www.beginningssvcs.com) offers information on early detection of hearing loss, communication options, tips for planning educational programs, and working with educational and auditory professionals. Other areas of interest include: information on cochlear implants, hearing tests, financial aid options, and frequently asked questions. Beginning Services also offers a weekly chat room on Tuesday evening (8 pm Eastern Standard Time) to discuss current issues for adults with hearing loss and parents of children with hearing loss.

Bionic Ear Institute

Research on the bionic ear system has been done at Melbourne University since the 1960’s. This program, created in 1983, continues the medical research started at the university. This website offers a history of the bionic ear, first implanted in 1973 by Graeme Clark, and information on the newest types of implants available. Also shown are pictures of various processors, headpieces and implants. For those students interested in studying abroad, they offer bachelor, masters and post-doctorate learning programs in this field. For more information, visit: www.bionicear.org.

Boys Town National Research Hospital

The Boys Town National Research Hospital’s mission is to help heal America’s children and operate the nation’s leading clinical research center for childhood hearing loss and related disorders. Information on patient services, research, and education can be found at: www.boystownhospital.org

Deafness Research Foundation

Founded in 1958, the Deafness Research Foundation (DRF) is the leading source of private funding for basic and clinical research in hearing science. The DRF is committed to making lifelong hearing health a national priority by funding research and implementing education projects in both the government and private sectors. In effect, DRF is the “venture capital” arm of hearing research, annually awarding grants to promising young researchers and established researchers to explore new avenues of hearing science. For more information, visit www.drf.org.

Electronic Deaf Education Network (EDEN)

The Electronic Deaf Education Network (EDEN) focuses on the topic of hearing loss in children. This website is generated by an audiologist who has a deaf son and a hearing daughter. EDEN topics range from a virtual museum of ancient hearing aids to the identification of types of hearing loss. EDEN offers a list of treatments available and support groups for parents. For more information, visit: www.bradingrao.com.

Healthy Hearing

The Healthy Hearing website is an internet-based resource for information on hearing loss, hearing aids, tinnitus (ringing in the ears), cochlear implants, dizziness, and other hearing health topics. It features articles written by hearing health professionals, an on-line hearing screening test, a testimonial section, and an “Ask the Expert” column. Visit www.healthyhearing.com for more information.

Hear in Dallas Inc.

This is a web site with a question and answer format focusing in on parents most frequently asked questions on cochlear implants for children. For more information, visit: www.hearindallas.com/3hearing.html

Hearing Center Online

This website features numerous products and resources for individuals with hearing loss and their families. Features include answers to frequently asked questions, a video of how the ear works, stories from people with hearing loss, how to understand a hearing test, updates on products and technology, and many other interesting items. Learn more by visiting www.hearingcenteronline.com.

Hearing Loss Education Center

This website was created by Cochlear Corporation to draw attention to the problems associated with a hearing loss and treatment options available. For more information, visit www.hearinglosseducation.com

Listen-Up Web

This is an extensive website with comprehensive information on different aspects of hearing loss, including information on cochlear implants. This site was created by a parent of a child diagnosed with profound hearing loss. The web site also features a listserv that parents of deaf/hard-of-hearing children may join. For more information, visit www.listen-up.org.

The Listening Room

The Listening Room is free rehab and education resource that provides continually updated activities and resources to support the development of speech, language, and listening skills for you or your loved one at any age; baby to adult! Activities and exercises can be practiced independently, with others, in the classroom, or with a listening coach. You can even download them to your iPod/MP3 player. Visit http://www.hearingjourney.com/Listening_Room/ for more information.

Musical Atmospheres

Musical Atmospheres is an interactive program designed to help adults with cochlear implants explore the wonderful world of music.

Visit http://www.bionicear-europe.com/en/musical-athmospheres/musical-athmospheres.html for more information

National Information Center for Children and Youth with Disabilities (NICHCY)

NICHCY, now called the National Dissemination Center for Children with Disabilities, is funded by the U.S. Department of Education, Office of Special Education Programs. This website provides information about recent research and how it relates to children with disabilities. The website is geared toward educators, administrators and families. Features of the site include disability-related resources by state, full-text articles, and a Spanish version of the website. Visit www.nichcy.org for more information.

National Institute on Deafness and Other Communication Disorders (NIDCD)

The NIDCD is part of the National Institutes of Health. The NIDCD provides a large source of financial support for research related to deafness and other communication disorders. The NIDCD also provides training and funding opportunities for students interested in pursuing a career in research related to communication disorders. Other features of the website include health information, free publications, information for educators and students, and a Spanish version of the site. Visit www.nidcd.nih.gov for more information.

NIDCD National Temporal Bone Registry

The National Institute on Deafness and Other Communication Disorders (NIDCD) of the National Institutes of Health (NIH) established the National Temporal Bone, Hearing and Balance Pathology Resource Registry in 1992. The National Temporal Bone Registry exists so that researchers can study human temporal bones to better understand disease processes that affect hearing, balance, and facial nerve function. Outcomes from this research help to confirm clinical diagnoses made during life, and evaluate how effective various medical and surgical treatments are. For more information, visit www.tbregistry.org.

Nebraska Commission for the Deaf and Hard of Hearing

The Nebraska Commission for the Deaf and Hard of Hearing aims to improve quality of life for Deaf and Hard-of-Hearing people of all ages by providing assistance, advocacy, and access to services and information. For more information, visit www.ncdhh.ne.gov/

Oberkotter Foundation/Oral Deaf Education

The Oberkotter Foundation is a non-profit organization that supports the Oral Deaf Education website. This website aims to provide information regarding oral deaf education, including a listing of auditory-oral education centers worldwide as well as resources for parents and professionals. The Oberkotter Foundation also distributes free videos and materials on oral education. For more information, visit www.oraldeafed.org.

PBS: The Sound and the Fury

This 2001 Emmy Award Nominated Program focuses on the Deaf culture and the impact cochlear implants have had on the Deaf community. This web site offers the history of Deaf culture in the United States and opinions of both non-cochlear implant and cochlear implant users. Additional features include a discussion area, lesson plans for educators, interactive sign language program and extensive information on the history of cochlear implants and how the cochlear implants work. For more information, visit www.pbs.org/wnet/soundandfury/index.html

Product Troubleshooting

Should you ever encounter any difficulties with your Advanced Bionics cochlear implant system, these troubleshooting tips are available to help you minimize any hearing interruptions and keep you hearing in everyday life.

Visit http://www.advancedbionics.com/com/en/support/troubleshooting_guides.html for more information.

Sonicpuzzle.com

This website contains various cochlear implant simulations. One can select the stimulus (e.g. man talking, dog barking, etc.) as well as the number of cochlear implant channels (from 2 to 32). For more information, visit: www.sonicpuzzle.com/CochlearImplants.

Tools for Schools

Tools for Schools (TFS) is a free online program from Advanced Bionics designed to help children with cochlear implants succeed in the classroom. On the TFS website you’ll find sections on Product Information and Troubleshooting, Educational Management, Rehabilitation Materials and support, Assessment Tools, Reference Materials and Tools for Toddlers.

Visit http://www.advancedbionics.com/com/en/support/tools_for_schools.html for more information.